We Fund Excision Surgery
for People with Endometriosis
Because access to the gold standard of care shouldn’t depend on privilege, location, or insurance.
100% of donations fund excision surgery—but demand is outpacing funding, and patients are waiting.
Policy Change
By advocating for legislation that requires insurance companies to provide coverage for excision surgery,
policymakers can ensure this highly effective treatment becomes accessible and affordable for individuals
suffering from endometriosis.
We specifically advocate for:
Updating CMS coding to create a distinct code for endometriosis excision surgery
Recognizing excision as a specialized surgical procedure
Establishing appropriate reimbursement rates that reflect the time, skill, and resources required
Increasing NIH funding for endometriosis research to at least $200 million annually
Implementing policies to improve physician education and accelerate the diagnostic process
Insurance
Insurance coverage for endometriosis excision surgery is essential to ensure individuals can access the care they need without facing significant financial barriers.
The current reimbursement structure has created a healthcare desert where:
Most endometriosis specialists are forced to practice out-of-network
Medical schools don't adequately teach excision or proper identification of endometriosis
Patients face extraordinary out-of-pocket costs for expert care
Ablation and excision receive identical reimbursement despite vast differences in complexity, skill required, and outcomes
The Scope of the Problem
Research funding for endometriosis receives just $2.00 per patient per year (only 0.038% of the NIH health budget)
By comparison, diabetes receives $31.30 per patient and Crohn's disease receives $130.07 per patient
Diagnostic delays average 8-10 years from first doctor visit to diagnosis
The combined economic burden is ~$28,000 per patient annually
27% of women with endometriosis miss out on promotions, 54% experience income reductions, and 1 in 6 ultimately leave their careers due to this disease
Where does your
donation go?
All donations fund excision surgeries for patients in need. We are volunteer-run, and both operational and policy work are fully covered by our founder.
What drives our advocacy?
Our mission is to champion improved healthcare coverage and access to excision surgery, the gold standard in endometriosis treatment, and devalue the outdated ablation surgery method. We strive to make this life-changing procedure accessible and affordable for all patients, regardless of their financial situation or insurance status.
Help end the wait for surgery.
And give someone their life back.
Applications are outpacing funding—your donation helps a patient access critical care.
In Partnership with SHE+: Nicole’s Endo Story
She’s Not Dramatic is a campaign that shatters the harmful stereotypes surrounding women’s pain—especially for those living with endometriosis. For too long, patients like Nicole have been dismissed, misdiagnosed, and gaslit by a medical system that treats them as emotional instead of ill. In partnership with the SHE+ Foundation, Nicole shares her story to raise awareness about the reality of endometriosis and the urgent need for access to proper diagnosis and excision surgery. Her voice is one of many demanding a future where women are heard, believed, and treated.
Did you know endometriosis ranks as the third leading gynecological cause of hospitalization for girls, women, and persons AFAB?
Although endometriosis is commonly categorized as a gynecological condition in medical reporting, it is a whole-body inflammatory disease that can impact multiple organs and systems beyond the reproductive tract.
Speaking Out on Endometriosis and Medical Gaslighting
Featured on Pix 11 News, Nicole Notar, Founder of Endo Excision for All, opens up about her personal experience with endometriosis, shedding light on the challenges faced by millions of girls, women, and those assigned female at birth. Through her story, we advocate for greater awareness, early diagnosis, and effective treatment options for endometriosis sufferers. Watch the full interview to learn more about Nicole's endometriosis journey.
On The Blog
podcast
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Join host Nicole Notar as she welcomes Dr. Mallory Stuparich, a minimally invasive gynecologic surgery specialist. This episode demystifies the critical differences between ablation and excision surgical techniques, explaining why excision is considered the gold standard for long-term relief.
Listeners will gain valuable insights on identifying qualified specialists, preparing for consultations, recognizing warning signs of suboptimal care, and implementing effective post-surgical strategies to minimize adhesions and manage symptoms.
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Join host Nicole Notar as she interviews integrative medicine specialist Dr. Beck Hoehn about effective natural approaches to managing endometriosis. Discover how herbal medicine and acupuncture can complement conventional treatments to reduce pain, decrease inflammation, and restore hormonal balance. Learn how to integrate these therapies with lifestyle modifications around diet, stress management, and sleep for a comprehensive approach to living well with endometriosis.
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In this episode, Dr. Chisari shares her journey from vulvodynia patient to pioneering researcher, offering crucial insights about what vulvodynia is, why it's frequently misdiagnosed, and its comprehensive impact on daily life.
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Join us for an in-depth conversation between EEFA founder Nicole Notar and Dr. Yaniv Larish — a urological surgeon and excision specialist dedicated to treating complex endometriosis cases involving the bladder and pelvic nerves.
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Renowned embryologist, IVF expert, and the compassionate founder of ESSI Endometriosis Support, Ema offers insight, empathy, and hope for a better future in reproductive and endometriosis care. Anyone can join the ESSI Endometriosis Peer Support Group for FREE!
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Join us as Artisha Rawls shares her journey from nursing to founding The Uterus Bar, advocating for uterine health, and empowering women with fibroids, PCOS, endometriosis, and more. Discover her book, wellness products, and support group in Las Vegas.
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In this episode, we uncover the often-overlooked connections between pelvic floor dysfunction, hip pain, and endometriosis. Dr. Garner shares her groundbreaking approach to integrative rehabilitation, highlighting how breath, stress, posture, and even menopause play crucial roles in managing chronic pelvic pain.
Endometriosis Advocacy Chats
