Did you know endometriosis ranks as the third leading cause of hospitalization for girls, women, and persons AFAB?

Policy Change

By advocating for legislation that requires insurance companies to provide coverage for excision surgery, policymakers can ensure this highly effective treatment becomes accessible and affordable for individuals suffering from endometriosis.

We specifically advocate for:

  1. Updating CMS coding to create a distinct code for endometriosis excision surgery

  2. Recognizing excision as a specialized surgical procedure

  3. Establishing appropriate reimbursement rates that reflect the time, skill, and resources required

  4. Increasing NIH funding for endometriosis research to at least $200 million annually

  5. Implementing policies to improve physician education and accelerate the diagnostic process

Insurance

Insurance coverage for endometriosis excision surgery is essential to ensure individuals can access the care they need without facing significant financial barriers.

The current reimbursement structure has created a healthcare desert where:

  • Most endometriosis specialists are forced to practice out-of-network

  • Medical schools don't adequately teach excision or proper identification of endometriosis

  • Patients face extraordinary out-of-pocket costs for expert care

  • Ablation and excision receive identical reimbursement despite vast differences in complexity, skill required, and outcomes

Empowering Change: Our Founder Speaks Out on Endometriosis and Medical Gaslighting

Featured on Pix 11 News, Nicole Notar, Founder of Endo Excision for All, opens up about her personal journey with endometriosis, shedding light on the challenges faced by millions of those assigned female at birth. Through her story, we advocate for greater awareness, early diagnosis, and effective treatment options for endometriosis sufferers. Watch the full interview to learn more about Nicole's endometriosis journey.

The Scope of the Problem

  • Research funding for endometriosis receives just $2.00 per patient per year (only 0.038% of the NIH health budget)

  • By comparison, diabetes receives $31.30 per patient and Crohn's disease receives $130.07 per patient

  • Diagnostic delays average 8-10 years from first doctor visit to diagnosis

  • The combined economic burden is ~$28,000 per patient annually

  • 27% of women with endometriosis miss out on promotions, 54% experience income reductions, and 1 in 6 ultimately leave their careers due to this disease

What drives our advocacy?

Our mission is to champion improved healthcare coverage and access to excision surgery, the gold standard in endometriosis treatment, and devalue the outdated ablation surgery method. We strive to make this life-changing procedure accessible and affordable for all patients, regardless of their financial situation or insurance status.

On The Blog

Featured
Navigating Relationships When Endometriosis Is Part of Your Story
Navigating Relationships When Endometriosis Is Part of Your Story

Living with endometriosis is challenging enough on its own, but the condition doesn't just affect you—it impacts your closest relationships too. As a chronic disease affecting over 15-20 million people in the United States alone and more than 190 million worldwide; endometriosis creates ripples that extend to partners, family members, and friendships.

Nightshades and the Anti-Inflammatory Diet: A Path to Relief for Endometriosis Patients
Nightshades and the Anti-Inflammatory Diet: A Path to Relief for Endometriosis Patients

Recent research has shown growing evidence that anti-inflammatory diets can play a significant role in managing endometriosis symptoms. A 2024 study published in the Journal of Gynecology Research and Obstetrics confirms that diet can influence the pathophysiology of endometriosis by attenuating the inflammatory environment, making dietary changes a valuable complementary therapy.

How Patients and Medical Professionals Can Raise Awareness About Adenomyosis
How Patients and Medical Professionals Can Raise Awareness About Adenomyosis

Adenomyosis is a benign gynecological condition characterized by the infiltration of endometrial-like tissue into the uterine muscle wall (myometrium), causing symptoms like severe pelvic pain, heavy menstrual bleeding, and in some cases, infertility. Despite its significant impact on women's reproductive health, adenomyosis remains remarkably understudied compared to related conditions like endometriosis, with a striking disparity in research attention—as of May 2024, there were only 3,982 entries for adenomyosis in medical literature compared to 35,132 for endometriosis.

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podcast

  • Join host Nicole Notar as she welcomes Dr. Mallory Stuparich, a minimally invasive gynecologic surgery specialist. This episode demystifies the critical differences between ablation and excision surgical techniques, explaining why excision is considered the gold standard for long-term relief.

    Listeners will gain valuable insights on identifying qualified specialists, preparing for consultations, recognizing warning signs of suboptimal care, and implementing effective post-surgical strategies to minimize adhesions and manage symptoms.

  • Join host Nicole Notar as she interviews integrative medicine specialist Dr. Beck Hoehn about effective natural approaches to managing endometriosis. Discover how herbal medicine and acupuncture can complement conventional treatments to reduce pain, decrease inflammation, and restore hormonal balance. Learn how to integrate these therapies with lifestyle modifications around diet, stress management, and sleep for a comprehensive approach to living well with endometriosis.

Advocating for accessible endometriosis care.